REBEL SPIRIT MUSIC
IN or OUT + move for ALS
At the end of May, Saul Goldberg and Augustin Quancard, are set to embark on a grueling 2-month long cycling challenge from Seattle to New York in a joint fund-raising effort with with Project ALS to support the scientific research that will eventually find a cure for a deteriorating disease. MOVE FOR ALS is a fund-raising campaign inspired by Tony Judt, an accredited author, noted historian and brilliant NYU professor. Rebel Spirit Music recently caught up with Saul Goldberg, a former student of Judt’s, to talk about the inspiration to raise awareness, and, the motivation to find a way to cure the devastation ALS victims [including family + friends + fans] endure.
Q. WHO are you fighting for?
A. Project ALS in their search for a cure for the deadly disease ALS (aka Lou Gehrig’s Disease or Motor Neuron Disease).
Q. WHAT motivated you to get involved?
A. Watching ALS transform my friend Tony Judt from a fit, active, dynamic man to a shriveled body in a wheelchair.
Q. WHEN did you begin to take initiative?
A. February 2010
Q. WHERE can people go to make a contribution?
A. www.moveforals.com
Q. WHY ride your bike all the way across the country?
A. Why not?
Q. HOW will you continue to raise awareness after your journey?
A. We plan a homecoming event in July in conjunction with Project A.L.S. Check the site regularly for updates!
Amyotrophic Lateral Sclerosis, or ALS, also known as Lou Gehrig’s Disease and Motor Neuron Disease, is a fatal neurodegenerative closely related to Alzheimer’s, Parkinson’s and Huntington’s that can affect adults of all ages. ALS targets large brain cells residing along the spinal cord called motor neurons. The motor neurons sick then die causing a person to progressively lose the ability to walk, speak, swallow, breathe or MOVE, and, despite the brain remaining alive and kicking, ALS is usually fatal within 2-5 years of diagnosis. In 1869, Jean-Martin Charcot first identified ALS ~ seventy years later, baseball player Lou Gehrig died of the disease ~ then in September 2008, nearly seventy years later, historian Tony Judt was diagnosed with Lou Gehris’s Disease. Despite the history of the ALS, very little has been learned about it since being discovered in 1869 ~ today, whatever you want to nickname this devastating disease, it still continues to remain a medical mystery plus one unknown cure.
Saul Goldberg is our debut Rebel With A Cause and we will be honoring his team’s efforts with a private event hosted at Flux Studios next week. Please RSVP to this exclusive event also featuring a few of our favorite Rebel Spirit Artists who will be performing a live recording session!
May 5th, 2010 at 1:58 pm
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May 5th, 2010 at 11:42 pm
hi wats your myspace page
May 6th, 2010 at 11:18 pm
myspace.com/rebelspiritmusic
May 8th, 2010 at 10:31 am
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May 8th, 2010 at 8:11 pm
[...] This post was mentioned on Twitter by Will Knox. Will Knox said: Playing a secret show with secret people on Tuesday.. get in by clicking here: http://rebelspiritmusic.com/2010/05/move-for-als/ [...]
May 10th, 2010 at 6:29 am
[...] week of, via text or e mail-your choice. All we need is a RSVP and you are all set! Simply go to http://www.rebelspiritmusic.com and enter your preferred contact information in the spaces provided. This will count as your RSVP [...]
May 10th, 2010 at 9:17 am
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May 11th, 2010 at 9:20 am
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May 12th, 2010 at 6:22 pm
stay tuned ~ we are hooking all that up and you will be visually stimulated
May 13th, 2010 at 2:17 am
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May 13th, 2010 at 3:44 am
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May 15th, 2010 at 3:29 am
Q. HOW will you continue to raise awareness after your journey?A. We plan a homecoming event in July in conjunction with Project A.L.S. Check the site regularly for updates!
+1
May 17th, 2010 at 3:03 pm
Hi, thanks so much for these tips! My blogs usually do bring readers and responses. One thing I do is engage with the readers. Answer questions in responses and make clarifications where needed. I think they appreciate that I take the time to talk to them.
May 17th, 2010 at 10:24 pm
First reaction when i saw the before and after: awesome.