MOVE FOR ALS [update]
* Saul + Auggie are currently en route cycling across the country for their cause ~ help us root them on @moveforals!
MODERN VINTAGE [update]
* Alec Gross was selected as the first artist to be part of the RSM + MVR compilation album due out next year!
[JUNE 2, 2008 ~ LOWER EAST SIDE] The song bonus track below was written and recorded for Rebel Spirit Music by the one + only ALEC GROSS ~ unauthorized downloads are just like stealing, but please feel free to preview this unreleased original theme song:
At the end of May, Saul Goldberg and Augustin Quancard, are set to embark on a grueling 2-month long cycling challenge from Seattle to New York in a joint fund-raising effort with with Project ALS to support the scientific research that will eventually find a cure for a deteriorating disease. MOVE FOR ALS is a fund-raising campaign inspired by Tony Judt, an accredited author, noted historian and brilliant NYU professor. Rebel Spirit Music recently caught up with Saul Goldberg, a former student of Judt’s, to talk about the inspiration to raise awareness, and, the motivation to find a way to cure the devastation ALS victims [including family + friends + fans] endure.
Q. WHO are you fighting for?
A. Project ALS in their search for a cure for the deadly disease ALS (aka Lou Gehrig’s Disease or Motor Neuron Disease).
Q. WHAT motivated you to get involved?
A. Watching ALS transform my friend Tony Judt from a fit, active, dynamic man to a shriveled body in a wheelchair.
Q. WHEN did you begin to take initiative?
A. February 2010
Q. WHERE can people go to make a contribution?
A. www.moveforals.com
Q. WHY ride your bike all the way across the country?
A. Why not?
Q. HOW will you continue to raise awareness after your journey?
A. We plan a homecoming event in July in conjunction with Project A.L.S. Check the site regularly for updates!
Amyotrophic Lateral Sclerosis, or ALS, also known as Lou Gehrig’s Disease and Motor Neuron Disease, is a fatal neurodegenerative closely related to Alzheimer’s, Parkinson’s and Huntington’s that can affect adults of all ages. ALS targets large brain cells residing along the spinal cord called motor neurons. The motor neurons sick then die causing a person to progressively lose the ability to walk, speak, swallow, breathe or MOVE, and, despite the brain remaining alive and kicking, ALS is usually fatal within 2-5 years of diagnosis. In 1869, Jean-Martin Charcot first identified ALS ~ seventy years later, baseball player Lou Gehrig died of the disease ~ then in September 2008, nearly seventy years later, historian Tony Judt was diagnosed with Lou Gehris’s Disease. Despite the history of the ALS, very little has been learned about it since being discovered in 1869 ~ today, whatever you want to nickname this devastating disease, it still continues to remain a medical mystery plus one unknown cure.
Saul Goldberg is our debut Rebel With A Cause and we will be honoring his team’s efforts with a private event hosted at Flux Studios next week. Please RSVP to this exclusive event also featuring a few of our favorite Rebel Spirit Artists who will be performing a live recording session!